Families of SMA Foundation Limited

Name: Families of SMA Foundation Limited
Start: 2024-01-01T00:00:00+00:00
End: 2024-01-01T00:00:00+00:00

FSMA was established in 1998 with the mission of relieving hardship and suffering faced by Spinal Muscular Atrophy (SMA) patients and their families. The NGO is passionate about raising awareness about SMA diseases and the plight of these victims in HK and elsewhere. We also work with healthcare sectors to advocate for community well-being.

Project Name: BREATHE WELL
Project Summary: Spinal Muscular Atrophy is a serious motor neuron disease that affects children and eventually strips all voluntary functions. Many will fatally succumb to pneumonia due to an inability to breathe properly, exposing them to nasty respiratory infections. Our project helps them to live safely at home with mechanical ventilators.
Beneficiaries: 21 SMA patients (Current)
Very ill young patients on mechanical ventilation being cared for at home

SCMP Article

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Operation Santa Claus (OSC), a homegrown flagship annual fundraising drive jointly established by SCMP and RTHK in 1988, has grown from modest beginnings to become one of Hong Kong’s most recognised charity initiatives. It connects thousands of partners, fostering philanthropy, with its legacy continued by SCMP Charities Limited, a tax exempted charitable institute under section 88 of the Inland Revenue Ordinance (File No.: 91/7320).

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